allergies, my kids and me!

Our Early Allergy Story.

2011-12-07T15:18:00.000-08:00

Our Early Allergy story,

I have four children, who are now all in their teens, our third child, has multiple food and environmental allergies. He was born a respectable weight, and displayed the three main symptoms of food allergy before he was three months old. However, the medical profession’s understanding of allergy at the time of his birth 15years ago was patchy or totally unaware at best. That is still true for some today, depending on a GP’s and health visitors experience with patients with allergy.
The three main symptoms of an allergic infant, who is fully breastfed and under three months are, eczema, poor sleep pattern, and poor /slow weight gain. My son was fully breastfed, he had very dry skin ten days after birth, and by day fifteen we came home from boots the chemist with two carrier bags after being diagnosed with eczema. He was unable to sleep, and as my eldest child had colic I thought that he had it as well, showing all the signs of tummy ache that small babies often have. However, he was a tired baby, who scratched at his skin, and as the time went by, he slept for twenty minutes a day, and about two separate hours a night. He never slept for the four solid hours that most new born babies do. Of course sleep and weight gain in infants is linked, and although breastfeeding was going well, I was at a loss to understand his slow progress. At the time I had one son in afternoon nursery and a second son in morning pre-school. I was to put it mildly, rather tired!
Doctors and health visitors put everything down to the eczema and I concentrated on that, learning all I could about the routines, and how to apply the creams to stop the itch scratch cycle, and keep him cool and soothed. However, I think I knew something was wrong, the months passed, and the ‘colic’ didn’t disappear, still screaming at night and day by 5 months. By 7 months a health visitor and doctor asked me to keep a diary of the times he woke up during the night. By that stage if I got up past 8 times in one night I classed that as a bad night. They seemed shocked, and suggested I try a sleep clinic. I was on my knees with exhaustion and so we went. I was persuaded to try the controlled sleep method, something I had tried with my eldest and it did work very well for him. However, a child covered in eczema cries, gets hot, and starts itching, and the longer they cry the hotter they get and the more painful it is for them. I had to use cotton wool and warm water to remove his cot sheet from his bloodied face and neck. The resulting eczema flare up compounded my guilt. My eczema routine was all body moisturising about 5 times a day, with flare ups going up to 8 times or more. By 9 months we were referred for ‘wet wrapping’ by the GP, and suddenly he skin seemed a little better, (linked to time of year) and he slept for four hours for the first time. His sleeping pattern started to continue to match a new born, and he started to look better. Then by 12 months something happened to change all that, weaning was still a very slow affair, and started at 6 months. He still mainly preferred breast milk and only took small amounts of food, chewing well etc. I took older son to school and my hubby gave him toast with smooth peanut butter. I came back to a quiet baby, with glazed eyes, bright red skin, covered in white hard hives. His GP said it was a mild allergy as his throat was unaffected, of course this was totally wrong, but we were suddenly on a huge allergy learning curve. When he was 13 months, I tried giving him scrambled eggs, (still totally allergy unaware) in order to find something high fat to help him gain some weight. His symptoms were instant and horrific, violent vomiting and screaming and his bowels emptied with force (a serious sign btw) and were his vomit and poo touched huge hives erupted, and he went suddenly quiet. I gave him a huge dose of piriton, and washed him. Of course I should have called for help; I thought he was just exhausted after the vomiting. He recovered, and we were very, very lucky that day. My GP referred him to the local pead, who said his reactions were mild to moderate, and to just avoid all egg and peanut, and that he couldn’t have a epi pen because they were dangerous for infants under 25lbs (advice that was incorrect in so many areas…) but she did give me instructions on how to use a epi pen, which we would be able to have when he reached the magic 25lbs. I went home and rang AllergyUK and spoke to a nurse, who sent me a letter, which explained that our son was at risk of anaphylaxis and did need an epi pen and referral to an immunologist. It took my GP two weeks to find one. We were sent a letter explaining that our first appointment date would be given between 8 months -18months. These days London appointments only take 8-10 weeks which is a vast improvement. After his first appointment, we came home with a list of his allergies, peanuts, tree nuts, egg, dust mite, tree pollen, and hay fever. We were given a leaflet on dust mite allergies, with the doctor’s sage, if unhelpful advice to not vacuum if our son was in the house.
We came home and in the months that followed blew a pile of money on wooden flooring, chest freezer to freeze teddies overnight before washing, leather sofas, good quality allergy bedding, and to our joy, his skin improved and he slept and started to put on weight on a limited diet. One day a local nurse rang up about the wet wraps, but it was too little too late. We found our own way to control his world as much as possible. The oncoming year brought new allergies that were discovered, so we were given epi pens by our gp and by the time we went back to London they were very surprised at the ever growing list of allergens and his symptoms, and were happy that he had epi pens. He didn’t reach the magic number 25lbs until he was nearly 3 yrs. old.
Our son followed the ‘allergic march’ growing slowly out of his eczema, and developing higher severity environmental allergies. As he had an ever longer list of allergies, and we were told that he might grow out of some, but not all , so we have brought him up to try and cope with his allergies. Teaching him in small steps to manage his own allergies, and this is still an on-going process. The impact on the family, and his life has been huge, every social occasion has food, and family trips to restaurants, days out and travelling have to be planned ahead to a vast degree. The emotional strain of being a young child and teen that has had many allergic reactions and has required his epi pen three times this year so far is huge. He is coping with a burden that an adult would find difficult.
By the time our son was two years old I was running a local allergy parent support group, was a member and volunteer for Allergyuk and the Anaphylaxis Campaign. My health visitors passed on my details to other parents struggling to cope with infants with eczema, and sleep problems and allergies. I spent time visiting these mothers, and passing on leaflets from the allergy charities. As time went by I had another baby and with all our boys at school, I organised open evenings with guest medical guest speakers, and raised money at carnivals. I worked part time with the campaign with teenagers, and started giving allergy management presentations to school staff, parents and school nurses and early year’s students at local colleges. This was a natural step for me, as my work background was in senior management roles in various child care establishments. I have given presentations on environmental allergies to members of the press; our family has appeared on documentaries, BBC breakfast news, sky news live, magazines and newspapers. I have been I am currently a just starting my 2nd year of my early years degree, and work part time in a preschool, and still volunteer for the allergy charities, both local and national. I still support parents by e-mail or phone, as it’s important for parents of allergic children to be in contact with parents that few steps ahead of you, and support each other.

Sarah chapman.

christmas is coming.

2009-11-01T15:19:00.000-08:00

For us in the uk, the first warning of christmas ,starts roughly at the end of August.
When the first catalogues/advertisments slip through the door.
I used to get such nice tempting ones years ago, featuring expensive high heeled shoes, wonderful underwear, expensive gold stuff, and i could leave the pages open to give a little christmas hint....

but suddenly things have changed, and someone has taken note of my middle age, all i seem to get these days are tarten slippers with ring pull zips, crimpoline trousers with elastic waistbands, ( which are becoming more temptingly comfy every year) and underwear that promises to scoop everything up, and pop it from were it came from.

my husband thought it was all very funny, until it became personal, when one arrived addressed personally to him, and was greeted with horror.
A smiling picture of a 70 yr old man, on a motorized shopping scooter, and the caption,
' dear 'hubby', you too can enjoy shopping again with out all your normal aches , pains and discomfort'!!

oh, how I laughed...........until my 20% coupon for a box of tena lady came through the door.
i have seen the ads on telly, and i dont understand them, whats so funny about tena lady?,
why are they laughing so uncontrollably while pissing themselves?
does tenna lady have some happy drugs inprinted on to it?.............if it did i would take up the 20% coupon!

anyway , am drifting from subject, going back to christmas, and the start of the never ending, and quite futile hunt for celebration food for the food allergic, something egg/nut/yeast/free, and not so bland and tasteless that the outer packaging can chewed with greater relish.

I look for a safe christmas cake , scottish shortbread tail biscuits with out traces of nuts on petticoat tails, christmas tree chocs without hazelnut puree.........

having got 4 kids, and a couple of part time jobs, finding the time to cook, shop/ shop/ shop/wrap/ look happy/requires a lot of time, and effort........

i get christmas ezcema about this time, and i take care not to waste the level of stress that causes such skin disfunction, and scatter dry flakes around...........................mainly in the christmas biscuit tin section of marks and spencer. Its my own from of decrative snow. some are replulsed, others simply think it adds to the festive shopping atmosphere. but its become a traditon for a few years now............

and so, i promise myself i will spend more time this year cooking, and try to avoid the temptation to search/e-mail/beg for nasty tasteless safe treats.

i can also add, that the underwear that scoops everything back to its original place, does work.
however, although resonably priced , it can cause some nasty expensive after effects. a distressing amount of pins and needles in lower limbs can result in accidents when standing after sitting , and wine spilled on a white shirt is not good news, esp when its not your own shirt,......
and later on in the (hellish) evening, you find that the small print requires a further purchase of machinery to get the stuff off your body.
hubby is far too busy with his own version of the one legged trouser dance at the end of the bed....

and so to christmas .............further posts must follow soon.........

food allergy study day friday 18th september 09

2009-09-21T06:05:00.000-07:00

I attended the the food allergy study day which had some fanstastic guest speakers from all over the uk.

i am going to go over some of the notes i have made from that day.

the first speaker was Gillian VAnce, from newcastle gen hos, she is the clinincal lead for the northern region peadiatric allergy service , and is supported by a team of 6 specialist consultants. her work covers all of peadiatric allergy, from single food allergy to complex and multi system allergic symptoms.

Her presentation covered a pretty large area, introducing food allergy to the room of 330 plus people from mainly medical backgrounds.
the headings covered the bacis features of food allergy, its clincial implications, and used to explain symptoms some clear photos. the culprits, the importance of history taking , and diagnosing classic food allergies.
testing was interesting,
skin prick testing v blood test, RAST

SPT is
cheap
painless
has instant results
has sensitivity 90% specificity 50%

blood tests,
specific IgE measurement , can be used with,

history of anaphylaxis

recent antihistamine use,

widespread eczematous skin

however is
expensive

results take following week.

next part explained how to reply to patients question, 'how severe is it doctor'?
and explained the unpredictability of reactions.

a e.g of good allergy practice,
secure dignosis,
with particular risk to those with peanut and tree nut allergies.
good asthma control
patient 'ownership' of condition
-risk taking behaviour.

uk study by pumphrey 2007
total of 48 uk fatalities
-19 of 48 had epi pen
used correctly by 9
not used correctly by 10 (used too late, or not carried, n=4)
missused (n=1)
over reliance = epinephrine auto -injector is one part of A.M.P

avoidance can be difficult

(boyano-marinez JACI 2009)
children with known CMA (n=88)
40%children had at least one adverse event during previous year. (N=53)
17% (n=6) at least one severe reaction
29 of 46 products as milk containing, cold cuts, biscuits ,bread, appetizers, cosmetic. label not specified, n=7

good allergy evaluation may reduce reoccurance

-cambridge group nut allergic cohort (clark AT and Ewan PW JACI 08)
785 children with 1-2 yr follow up
114 accidental reactions
3.1 annual incideance rate
90% of reactions - same or lowere severity
3 fold reduction in injected epinephrine use.

THE NEXT SPEAKER WAS,

Robert Boyle.
senior lectuer at st marys

interesting comparaison of allergy notes from the past.

an australian doctor , a A Kemp, looked back at hosptial records, and noted the following patient notes,

1946
egg 0.02%
milk 00.04%
peanut 0%

compared to 2006
egg 36%
milk 16%
peanut 43%

no real solid reasons for this increase, number of ideas speculated.

'80% anaphylaxis in children with food allergy in uk'
reasons for possible allergy rise , but not fully understanding of whats gone wrong with humans immune system.
for some reason tree nut allergy has developed as children grow older, due in part to tree pollen exposure.

H G Wells is famous for his books , but he was a respected scientist, and conducted some studies on guniea pigs. he induced a allergy to eggs in pigs and studied their reactions.
he could induce allergy he would give the pigs a large oral dose of egg, and give vaccine at same time.

humans react to proteins, and a research study looked in to plant protiens and pin pointed the 27 food families that seem to cause problems.
these plant proteins are found in 8000 other food families. why this happended is unexplained.
questioning the idea that perhaps its the way we are exposed to the antigen?
a UK study (lack) loooked at children in israel , who are weaned /given peanut earlier than uk children. so perhaps potential allergenic food should be given early in infancy than previously thought.

inhalalent allergens= from yrs 1976-1980 and
then 1988-1994 ragweed doubled and other inhalent allergies doubled.

there is also a higher link towards incidence of allergy in children who have had a caesrean birth.
perhaps exposure to microbes during a vaginal birth , help prevent allergies or strengthen immmune system.

Intestinal mircroenvironment.

pro-biotics/ pre -biotics

may prevent ezcema in early months for 20% of children, however not know if linked to food allergy.

may have greater understanding of food allergy in 18 months time when new study released.

liver function and intolerance seem to be linked, after studies on animal models.
young children who recieve a liver transplant in uk between age 1-3 yrs . have higher rtate of food allergies. cows milk, egg, peanut.

after presentation questions asked,

Q would you recommend oral pre-biotic for pregnant woman?
A studies wide,varied and not clear.

Q which pro-biotic formula should be given to infants?
A one brand mentioned, but boyle explainshe works for this company, give his reasons.

interesting comment,

'its families general comsumption and lifestyle with regard to peanuts , not just maternal diet.

-----------
nxt doc,

george du toit consultant in peadiatric allergy in guys and st thomas's hospital.
(leap study)

general presentation covered testing and ig roles, pointing out that IgGG in high levels may indicate tolerance , rather than intolerance.
so conclude that its not a good dignosis tool.
patch testing no good for igE testing.

best , and most useful, and potenitally life saveing part of this presentation , was this video from australia, a home video. which was fairly shocking.
the parents had been told by the gp to just go home and give infant milk, and the parents fed up of trying to explain (repeated visits to gp) what happens decided to video it , to show him.

george de toit, started the video, and the father is clearly heard to say that he had just given his daughter 5 teapsoons of cows milk. at that point george du toit stopped the video, and told everyone to listen carefully to this childs breathing.
the film continued, and the child , who was pale, with panicked eyes, was visably struggling to breathe, a stridor making that hoarse sound accros her throat.

I paused to make sure that this was truely making a impact, and was gratified to see it.

the presentation continued,

children complaining at younger age about fruit allergies OAS at 8 -10 yrs

and early age of sentisisation ???

young children peanut/egg/milk (leap study)

concluding that babies make antibodies a v young age, /womb.

----------------
next study

andrew clark,
of addenbrookes hospital in cambridge, running clincial trail of peanut oral immunotherapy.

explanation of desentisisation v tolerance

the whole burden of food allergy
uk - 1 in 50 school children
10% reactions severe.
3-14 % 1 yr risk of further reactions.

no current disease modifying therapys

quality of life change after diagnosiss.

desentisisation = increase in threshold required to cause reaction.

tolerance ,
long term immunological changes
- can eat food, in any amount without ongoing treatments.

history of desentisisation in food allergy,

Alfred T Schofeild 1908
case study of
egg posioning' (anaphylaxis not common term at that point)
13 yr boy
150 attacks of egg poisoning.

gave good , clear discription of anaphylaxis.

started immunotherapy daily, 1/10,00 mg egg orally for one yr.
appeared to work.

however current work has indicated that oral immunotherapy gives mixed results.

CAN achieve desentisiation but NOT total tolerance.

for milk a partial tolerance = 150 mls milk (s.mallery, longe 08, desen with milk)

peanut oral immunotherpy, Burks JACI 2009

escalation day 0.1mg to 50mg
(all reacted , 4 required adrenaline use)
build up phase, 50mg to 30mg (1/2 small peanut)
1/2 reacted.

final challenge
39 enrolled
10 withdrew
29 completed course and challenge. (up tom 30 peanuts)

safety
higher risk of reactions esp on 1st/escalation day

sudden loss of tolerance at home, -unexpected reactions

reasons,

-tiredness
-systemic illness
-exercise soon after dose.
-menstration

missing single dose for peanut is well tolerated.

however in milk, desentisation , one subject who was up to 248 mls daily of milk dose , and never missed dose before, missed one dose. nxt day took dose as normal = anaphylaxis

so conclude with further investigations that egg and milk desentisisation not likely to resolve , esp for those with persisitant , severer allergy or poor compliance.

which allergies to select for this treatment?
? not in young children as likely to resolve and poor compliance
?persistance/severe
peanut
? difficult to predict risk, persistnat other food

?fish/fruit (OAS), wheat, shellfish, tree nuts.

Optimisation
starting dose
-varies with patients own threshold?
-maintenance
-dose and frequency to maintain desentisisation

duration
?when is tolerance attained?
safety
updosing reactions , managable but home reactions unpredicatable.
more data required
post OIT exposure
-how regular ?
-weekly?

next presentation

Azizi sheikk

very interesting man, has children with allergies, since 03 chair in primary care research and development in centre for population health sciences at uni of edinburgh

anaphylaxis was coined first by portier and richet in 1902
.while attempting to immunise dogs to the venum of the sea anemone, they sentised them , which lead to fatal allergic reaction on re-exposure.

anaphylaxis, opposite of prophylaxis, meaning against or without protection.

for torturing dogs, they were awarded the nobel prize.

in uk 20 deaths a year but may be higher , due to not being officially recognsied as such.
time of start of reaction to death in severe cases, 20-30 mins
shorter time for drug allergies.

anaphylaxis uncommon 8-10 per 100,000
re-ouccrance and reactions adverage at one every 1 1/2 yrs

body posisition was mentioned in detail by azizz, 'empty ventrical syndrome'

concluded that anti histamine shouldnt be always used as front line first treatment, as it wont save a life on its own.

20 % of biphasic reactions after 8 hours min period.
recommended obs in hospital after severe reaction, 8 hrs, but may react 24 hours later.

oddly rates of uk asthma compared to food allergy admissions,are showing drop in asthma and rise in food allergy.this is because asthma treatment improving and so reduced hospital admission for asthma.

this is near end of my notes. and i have to stop, hand acheing .................hope you found it interesting.

sifting through accidents.

2009-05-30T14:44:00.000-07:00

when you have children, accidents happen, sometimes the CHILDREN are THE accident, something i always refer to as a 'happy surprise'. Quite a lot of woman have those, or at least one in my case.

When you have four children, and one with a few allergies, a accident with one, means your eye is not always on the allergic child. That's when the risk of a allergic reaction rises.

one such accident happened a few years ago, when my children were young, cute , happy, and certainly more rewarding than my current now much older children.
Who are all now driven by hormones, hate , and the bitter gall of the mess the 'old people' ( yes, thats me) have made of the plant.
I dont get any brownie points for mentioning the use of terry cloth nappies for two of them, mainly because i still use them for mopping the kitchen floor. It didnt go down at all well when I waved one of them under his girlfriends nose, explaining that he loved wearing them.
I suppose it did spoil his current image of a more tidy guitar playing Russell Brand.

anyway, my 2 and bit daughter took a few lego bricks with her to the bathroom, and sat , face pink and chubby legs swinging, while playing with them.

I happend to walk past , to see her eyes widen, and wittness the large bulge in her throat as she swallowed.
Of course, being a calm mother i did the first thing that came to my head, ran down stairs ( like a headless chicken) and found the bucket of bricks and held up each one in front of her,( hands shaking) to find out which one she has now lodged in her tummy.
'is it this one darling'?

'no mummy.'

'this one'?

'no'.

'no?, ermm this one'? ( am panicked, now getting bigger bricks out box)

'no'

'its diss one mummy, diss one, is 'ellow, like my t-shirt'.

you,ate. a .lego, because...'?

'is like my t-shirt mummy'

'well,.... of course you did, i totally understand,......

sweetheart dont you think this co-ordination thing is going a step to far'?,

Of course next step was to take my panic to someone else to deal with, someone with a nice crisp clean white coat, and badge, with 'doctor' on.

theres a always slight panic about taking all four kids in a hospital waiting room, and you run through a list of someone you could dump them onto.

But there isnt going to be a long list when you have a child with food alleriges.
Anyone who looks after them needs pre-training beforehand.
you have no idea how long you are going to be, and allergic child will need feeding, and thats difficult, if not impossible, if you are not in our allergy world.

So you drag them into the car, go back inside for allergic sons forgotten meds, while daughter crys for her lego, and the others try and make a dash for freedom as the hosptial emergency room has been visited far too frequently lately.

The hospital car park is another stress point, a space hard to find near the hospital, and you have to pay for the privilage of using it. A brief fumble under the seats and the bottom of your hand bag and you find enough coins to stay for a short while.

of course its raining, and you dont have any coats for the kids, but you get in to the heaving accident and emergency room, dripping wet, and look around at the selection of the great damp , steaming, unwashed, the bleeding and half dead, or half drunk, and its going to be a long wait.

A few hours and you give up all pretence of being a caring devoted mother, having spent have the previous night up with two kids, one had a nightmare , and one who doesnt seem to enjoy sleep. So i am crumpled, worn out in the corner, with the bags under my eyes like two used tea bags.

The older boys are trying to distroy the coffee machine, and I would get up and stop them, but I spent half an hour trying to get any kind of fluid out of it, and then another half hour trying to get my money back. So it deserved some sort of kicking.

we are huddled away from the vending machine filled with rather nasty snacks , and of course that machine is working very well. everyone is eating nut filled chocolates, and other high salt snacks.
Other son has found a hole in the seat of his chair and is pulling out the foam, and the youngest is following another little girl around the room with a dislocated shoulder.
Time passes, am promised that doctor will look at my baby soon.
While we wait , the little girl with the shoulder/arm problem, leans heavily on a chair, there is a loud click, and weary parents scoop her up and go home.

finally the doc arrives, worn out , and grey with tiredness, and is of course, impossibly young , and he has dribbled his last meal down his grey dirty coat.

I try to listen to what the doctor is saying and keep one eye on the four kids running around the bed, and in and out of the garish clown curtains.
which are there I presume, to make the doctors appear more friendly, as the clowns are of the steven king varity, and promise to fill any adult slumber with horror,let alone a small child.

The doctor calmly instructs me one what I should do, which is something I really dont want to hear.
now if i had more energy, i would of told this doctor the real truth, that he could shove his helpful advice were the sun doesnt shine, and ask him what mother of four has the time and energy to sift through her daughters bowel movements for two weeks? what about when she goes twice a day? or if I feed her sweetcorn?
what kind of advice is that?

but the kids are hungry , bored and need a good wash,(hospitals are germy)and i need coffee and chocolate if i am to keep going, so we leave, drive home, and carry on.

asthma dreams...................

2009-05-15T04:12:00.000-07:00

I am a adult onset asthmatic.
Not a totally unexpected thing to happen, of course i hoped i would escape it.
But, it's a herditory sort of hobby, wheezing, and we all seem good at it.

I have to point out that the blame is fully on my mother's side of the family, not my father. He comes from a very , very long line of farmers, who live a long time, and are very healthy.
However, my mother's genes seem very stong, i have ezcema , asthma and kill all known forms of plant life. I darent go near a farm animal, just in case.

The good upside of this is that i was brought up with homegrown organic fruit and veg, but remained , like my mother , scared witless of the large healthy insects and spiders that came attached to anything green from our large garden.
We ate it all, but my mother had to use a collection of rubber gloves to cope.

A big part of uncontrolled asthma is the lack of sleep, the constant waking up , sitting up and fumbling around for your trusty blue inhaler.

Recently i am back ,once again to being a walking dirty phone call, and the nasty asthma nightmares have come back.

Apart from the common, drowning in quick sand dream, that crops up at 3am, two new ones have begun a small mini series in my sleep.

The first stars a well known tv man, and a common form of green veg. The other a sausage.

Last night, Dr phil visited me, and explained , carefully, that he had to perform a small op, on my left lung.

Dr phil is one of those males who have a shiny round bald head. Nature really does overcompenstate in other areas for some, and in ole phil's case , from the nostrils down.
I often suspect that his wife must of spent much her early married years occupied with hair removal from the bathroom plug holes. I bet , by now , if she had kept all that hair she could have stuffed every mattress in her house and saved a lot of money.

Anyway, dr phil carefully removed a great quantity of brocolii from my lungs.
It didnt help much. I still had to wake up and take some extra blue, and prop myself upright to sleep.

I am hoping that one night he explains what he is going to do with all that homegrown veg.

The sausage one is quite fun, up to a point.

I am a proud ,thin , and happy, red dyed spicy sausage. I am rumnbling/ bouncing down a stainless steel food line, then the shrink wrap machine desends. I wake up just before i am wrapped.

I am planning to drug myself in to good sleep tonight, have had enough of this sort of thing for the time being.
Tomorrow i will experience, hopefully, the joy of getting up the stairs without pausing. wish me luck!

food shopping with allergies , and four children.

2009-05-13T07:15:00.000-07:00

During the summer hols, i often ended up dragging all four kids with me to do the food shop.
It required vast amounts of what I was short of, mainly patience, money, and energy.

A major part of allergy management is reading, and understanding food labels. All information in very tiny print, sometimes ( in the case of toiletries,) in latin.

we had learned quite early on, what the mysterious label 'may contain' really meant, the hard way.
Mainly due to the projectile 40 min vomiting, which was repeated the next day instantly after trying another plain biscuit, from the same pack.
We tip -toed over the clean patches on our carpets, and cleared the house of all foods with may contain labels.

here is a typical trip to a large supermarket.

I start with a brief wash, and pat dry of both damp ends of baby, find clean t-shirts for the boys, and sponge the stains of my top, and try to get out of my pjamma bottoms and shabby but comfy flip flops.

While i dabbed the marks ( most forms of bodily fluid) off my shoulders, i would ask the boys go to the bathroom, or go on the potty.
of course this leads to lot of fun for boys, and a shout of 'lets play star wars'! is a terrible sign, which often led me giving up on the t-shirt sponging thing, go and rush upstairs while begging them to 'not cross the streams'!!!

Then of course ,you clear up the pee, find clean ( but crumpled ) t-shirts for the boys to wear.
however, you are now getting a little , ..erm...frazzled, so plop shirts over the nearest heads , and drag them to the front door.
one son now flashes his belly button when he breathes in, and the other has a shirt flapping around his knees. But you have no time to stop and sort all that out, because soon the baby will need feeding again.

You wriggle in to jeans, grab your money and car keys , and put the children that have a tendancy to escape in the car FIRST.

once you count the heads of the kids, have made sure that you checked that the front door is shut ( you only do this three times, any more than you have to go to the doc and get drugs for your after pregnancy OCD hormones. They are the same ones that make you want to clean the oven before you give birth.) then you start the car and go!

During the journey you leture the children on holding in bad gas, and stop 2yr old from trying to throw shoes out of the car window.
By the time you get to the car park, your head is sticking out the window as your eyes are burning and stips of skin are peeling from the back of your throat.

Farting is a constant source of entertainment for any male, of any age. It gets worse as they grow up.

The baby and parent parking space is taken up with sports cars, and slim looking woman without children ( who cant possibly have stretch marks, but your're not bitter, NOT AT ALL! ) and you find a space.
Not near any other cars , because of the damage your older boys do with the car door slamming.

A resonably clean double shopping tolley is found, a blanket for baby to feel comfy, and 2 yr old sits with his comfort blanket ( lankey), and thumb in his mouth.

Once in the shop, you avert gaze from high heeled shoes, because mummy's dont get to wear them very often, and the pretty bras, because new mums still need to wear grey pregancy bras, or stern feeding no nonsense bras.
Which have all the sexual allure of a dead fish. In fact the bras are a pretty good contraceptive in the early months.....

Everything has to speed up because you have two hands to push trolley, heavy with two children, and two mobile children that like to run away.

You try and ignore the fact that your 6 yr old has brought his 'sooty' puppet with him, and is skipping ahead, and pausing to 'listen' to what sooty is saying to him, then laughing out loud.
I'ts really best not to dwell on the fact that for the past 6 months your child has been talking almost non stop to his own hand.............

The four yr old loves the big supermarket shop, once he met a shop worker , flipping the hidden control programs open under the big frezzers.
He tried to climb in a frezzer once, i had to shake his trousers and socks free of peas when i got him home.
Buttons , switches, that could be pressed, must be pressed. They call him and beg for a pudgy finger to set them off. In fact the instore phones have been used as well. Often to call 'fireman sam' a favourite bbc cartoon character.

I whizz through the aisles, allergy problems mean that some sections of the supermarket are not going to be visited , ever, the on store bakery section, the deli section, and the pizza , curry , roasted chicken section.

some sections require a pause for thought, working out what ' nut free , but nuts on site' really means in relation to one small jam tart, when you realise that its all gone far too quiet.
2yr old is calmly chewing through a toothpaste tube packet, and trying to kick me while he sits in the trolley.

Around the corner of an aisle, you see a flash of the boys, and take a chance to ponder over a packet of toilet roll tissue.
hmmmmmmmmm? Aloe vera? has that ever touched allergic son's skin before?
The anti bac spray on the toilet seat last week has still left its mark, and not just on HIS bottom. Bearing in mind that tender area, is aloe vera a allergen for some?

A couple of old grannies walk by complaining loudly , you catch a drift of the comments, 'broken bread sticks' 'abandoned children' 'sword fights' seem to hit a memory, so all shopping is halted, and race to bread section.

once boys retrived, and bread kicked under the shelf, you drag them off quickly. Hissing madly in anger.............bribery is your only option now.

Somehow you get all shopping paid for, ( all fruit bruised and ruined ,but you are running out of time, baby is crying) get the mobile boys back in car.
Strapped up , and shut up with a chocolate bar,
and allergic son with something safe to chew on.

pause to
scrape the toothpaste off the babies legs, arms, and clothes, and sit in car to feed her.
Then drive home. and shopping does get into kitchen, but by now you need to cook a meal, do some washing, and sink in to the evening routine.

by 11 pm , all tins are put in to the cupboards, but there is a small pile of food that you cant use. hidden small print missed, and now delcared unsafe................and that happens all the time, every flipping week.
----------------------------------------------------------------------

Now, these days, all children are at school, and my only problem is reading the labels. my eyes seem to be giving out on me.
But my real theory is that my arms are just getting shorter, that's why the shape of the top of your arms changes so much!

bones shrink and your arms resemble the glorious shape and texture of a raw pork sausage.
our only choice is to buy expensive glasses to distract the attention from our arms.

well, thats what i do.

Rational Jenn: Food Allergy Awareness Week

2009-05-12T09:42:00.000-07:00

Rational Jenn: Food Allergy Awareness Week

first appointment at allergy clinic.

2009-05-12T07:47:00.000-07:00

After the egg reaction, i was more careful about his food, removing all egg, and avoiding nuts.
I also kept to the same limited food he was happy with, and was too scared to try anything new.
Breastfeeding came to an end at 15 months, resulting in longer sleep pattern, and being soothed by other means.
His sleep development ,did seem to match a younger child. Which made sense , a infant in pain is not going to learn to drop of to sleep by himself, or sleep in normal periods of time. so he was about 2 1/2 when he slept a whole night , which was about 4-5 nights a week.
Of course , once the breastfeeding stopped, his skin improved , down to three to four daily moisturizing ezcema routines, rather than 8-or more.
The big downside was the loss of protection, and his health suffered. He caught eveything going from his brothers, chest infections,ear infections, skin infections, you name it , he got it.

The ezcema wrap nurse rang up out of the blue to say that she had forgotten all about william, and had lost his paperwork. But by then I could see improvement, and that it was allergy related, and felt it was more under control.

He was 18 months old when his first allergy clinic appointment day dawned.
I was just creeping out of the nasty sicky stage of being pregnant (hmmm, well, that was linked to the stopping breastfeeding, and williams longer sleep pattern as well!! and a bottle of red wine, but i mustnt drift in to that in detail...) and had made arrangement for the older boys to be taken to nursery and school.

The clinic was heaving with families, little kids with raw ezcema running around, and others sitting with red arms with hives from skin prick tests.
william was weighed, measured, and then we went in to see the big doc, and his students.
He asked about william's early history, his reactions etc, then asked about our history and our other children.
We started listing our family itchy status on both sides of the family.
i didnt mention that even my mother's dog has ezcema, and sneezed a bit, but that was the only member of my family i must of missed out.

i hadnt thought of it before, but suddenly it did seem odd, i thought it normal to spend saturday night test patching new moisterizers with granny, uncle and mummy in the kitchen. My mum always used me as test person before her, as she considered her skin to be worse than mine.

I still have a the clear memory of my mum when she used a upper lip bleach for her dark hairs.............her top lip walked in front of her for two weeks!!
my mum also has a nickal/gold allergy , and had to go to hospital after her wedding to have her band removed. The nasty looks she got when she had me, just because she couldnt wear her wedding ring. That was the 1960's for you!

anyway am waffling, so must get back to point, which is that the doc seemed REALLY, (oh, good grief dont you two breed look,no, ooops too late! she preggers again!) shocked that the older boys didnt have anything much in the way of allergic disease. a hint of ezcema , very mild hayfever , which disappeard at 5 , which is normal.

The skin prick tests went without a hitch, the blood taken was more of an ordeal.
However , the SPTs were fasinating for us and william. Like the game bingo, we could have shouted 'full house'............he was instantly uncomfortable as the small prick went in to the peanut drop. The blister rising.

The problem with getting to the hosptial, I reflected later, was the effort was in getting there, and not thinking beyond that. Every parent hopes for a magic wand from a doctor to make baby better. It doesnt work that way for many things, allergies included. What we seemed to get from that first visit was a confirmation of the allergies we suspected. A few more, and a unhelpful leaflet, and the comment to never use the hoover in the house , while william was in it.
I had no idea what sort of place was suitable to put william in while i was vacumming,which part of the house was dustmite free.? But safe to put a dustmite allergic 18 month old boy? I did look in the cupboard under the stairs, but that may have been suitable for Harry Potter, but not for william with his dustmite allergy....

our list at that time,
was, a selection of common tree nuts, almond, hazlenut, brazil, peanut, dustmite, tree pollen,raw egg, cooked egg, dog,cat.

I cried in the car on the way home , it seemed like a huge list.

the light bulb moment FOOD

2009-05-09T11:02:00.000-07:00

I wasnt happy giving william a strong daily anti -histmine, it did seem to have side effects.
He spent a great deal of time on the sofa, thumb in mouth, in a sleep daze. His calorie intake did drop off.

He wasnt fond of food, in fact from the begining he often refused food, and so very tiny tastes were all I could get in him. I did start at 5 1/2 months,but he wasnt ready, so left it for a while and then tried again.

As he got older, his skin did react to the food he touched ( and then refused), like tomato. which being a acidic food, ( which does tend to 'shoot through' for some ) is a common cause of skin irritation in the young. I had seen this a few times with other children, so at first wasnt too concerned. But it did give me pause for thought, when the bright red skin with hives would take a long time to disappear.

By the way , I cant handle a raw tomato myself, or a raw potato, it would give a burning feeling in my hands. So i peel a potato under running water, and use a plastic bag to pick up tomatos or handle raw meats.

About this time he started to behave in a odd way while sitting in his high chair. He would SNIFF the food first, and then decide to refuse it outright, or try a little. He refused marmite ( which when he touched it, caused the hives and red thing), refused to eat anything with beans etc, or yorkshire pudding or cake.

This sniffing and turning his face away was quite common for him, I often thought he was a bit of a gorilla while he did this, as most apes sniff food before eating. Sometimes i would think back to his lovely newborn hairy ears.....................not so much baby as monkey.............a cute monkey though.

Hives seem to be part of the early years of multiple allergic children, I did at one time suspect that his ezcema was linked to cat and dog allergy. We visited my MIL who at that stage had a cat and dog.
once when he slept in his car seat on the floor, the dog walked by, and one single hair drifted slowly down on to his bare arm. A large hive lifted it up underneath almost immediately.
He also used to hive up on walks in the pushchair, or in the car on one side of his body/face if the vents were pointing at him.
once the hives went down, ezcema replaced it.
during the spring he did have a slight wheeze , and was given a inhaler and spacer for a while.

he went bright red when we went clothes shopping, pushing him through the shop floor, and the redness would only go once we got home. then he would be pretty pale, and worn out looking. we used to joke that he was a typical male who was bored with clothes shopping. how wrong could we be?

one day, my hubby gave the kids their breakfast, while took the oldest son to school.
when i returned , william wasnt looking so good. his face , neck , arms were bright red, his hands and arms had hives. He had been crying , but had stopped and sat exhausted with shiny eyes.

He had been given his first meal of toast and smooth peanut butter, he hadnt eaten it, just touched it and started to scream loudly in a panic.

So, we gave him some more of his anti histmime and took him to the GP.
who examined him, looked in mouth and throat, and said because he hadnt had any breathing problems, this allergy was mild.

As william was slow at weaning , he still needed lots of breastfeeding, and there were foods we hadnt even yet tried to give him. After all its in the rules to only add certain food types after 12 months.

SO , when i gave him egg, I didnt think of it as being a high risk food, just a high calorie food which might build him up a little.
He was 13 months old, and i popped him in the high chair with a bowl and spoon, put one mouthful of scrambled egg in to his mouth. Then turned away to deal with the needs of the other two boys. From behind me there was a brief pause, and then a huge below of pain.

william had gone bright red , and was screaming, he was frantically rubbing his face, and neck. hives appearing in front of my eyes. He suddenly violently vomited, and as i tried to clear the mess, when his bowels emptied and ran on the floor.
hives spread from contact with bodily fluids, so I picked him up, gave him a huge dose of anti histmine. Then stripped him, washed him and wrapped him in a big towel.
He was pale, the hives had gone, his eyes glazed with shock.
I didnt think of calling for help, i had heard of peanuts being a killer, but not anything else. I knew nothing of anaphylaxis, what it was, and when to get help.
And so it seemed did any one else, including all the doctors and nurses i had met, when trying to get help for william.
To this day, i am really aware that we could have lost william that day. since that day we have been in that situation again, and rushed him to hosptial. Even recently as he is now 13 yrs old.

So far we have been very, very lucky.

After this we pushed to get further help, and was reffered to a local pead, a woman who explained that william's symtoms were one the moderate side, and that avoidance of the food was the only way forward until he grew out of it.

I asked about epi -pens (having been doing some re-search) and she put me off the idea , saying it was dangerous for him to have one at such a low weight.
She explained that there was a risk of brain hemorrhages if a child is under a certain weight, but of course , there is a risk of brain damage from anaphylaxis as well.
He was 15 months old and still was no were near the 25 lbs to have the junior dose epi pen.
But, strangely she did give me a faded photo copy of instuctions on how to use one. To keep once he had met the magic 25 lbs.

It was after this time I rang AllergyUK to ask for help, and they explained that on the basis of his suspected peanut allergy it was our legal right to push for a referral to a pead immunologist.
Allergyuk also got one of their allergy nurses to write a letter to me, which really helped. I cant stress how important this letter was, and how grateful I am to this day.

My Gp worked hard to find someone to help, in fact , it took her two weeks to find a name for us. So that explains how rare these allergy docs are in the uk!

the waiting list for first appointment was 8 months to a year. When william got to the hospital , the waiting list below us was for 8- 18 months. Recently that has changed to for london area alone to 10 weeks, which is good. But when you bear in mind there are no clinics in ireland, scotland, wales, there isnt a lot of help to get for many, many allergic people.

natural is not always good, sometimes natual can be a horror story.

2009-05-09T10:08:00.000-07:00

William hit the magic age of 12 months and was suddenly old enough to be given a daily dose of piriton, ( a first generation antihistamine). This was given to help him sleep, and improve his skin.

Every day we dosed up this little man, and kept up with the eczema routine. Mild moisturizers for soap, oils for the bath, and then thick heavy creams once he was out of the luke warm water.

Once, I used a good quality olive oil as a moisturizer, being still in that odd mindset of 'natural' was good. How wrong could a mummy be?

I applied the oil to one leg, thinking I could compare and see if it had done any good. I didnt need to , could tell from 10 feet away which leg had the oil. It was a nice bright red but William didnt seem to be bothered . So, while one part of my brain was shrieking 'WOW, HES GOT ONE RED LEG............WHAT SHOULD I DO NOW?..............should i even him up and do the other?, will it fade? what does this mean'?
So not in a little shock, I decided to be cool and calm, and not scare the baby, and why not make it educational?

So i gently traced a finger over his leg, and sounded out his name, and watched his face , to see if he was concentrating. He looked quite interested, his eyes widening slightly................so I was just congratulating myself, until i looked down.
Its not every day you see a collection of wheals like that, and william is a pretty long name.
thankfully after shower, and re-doing a ezcema treatment, his leg recovered.
So, no , natural oils are not for his skin. More importantly, small tiny test patches first!

William wasnt able to have shampoo on his head until he was 12 months plus, and even then only a tiny amount of perfume free baby shampoo. I was happily surprised to discover that he had curly hair!

Some of Will's ezcema creams didnt agree with my eczema , one cream used to 'burn' my hands and make them really red and sore. But it worked for him, so I carried on using it.

Ezcema is a very individual thing, a treatment that works for one , doesnt mean that it works for other . Which is a major bummer really.

I developed ezcema myself, apparently, a few days after I was born.
ezcema treatment has changed a great deal from when I was young. I never had (certainly dont remember ) any form of moisturizers, only a small brown glass pot.
Which contained a nasty looking grey sludge, which didnt smell very nice. It was a mix of pretty strong steriod onitment.
Which I thickly slapped on every night, before sliding into my nylon sheets , while wearing my nylon, spark inducing nightdress. Who needed a night light in the '70's?

I needed to put a lot of cream on the back of my legs, and can remember the skin infections at school and the pain of it all. The standing in the playground and having the cold wind blow on the skin , on my dry, cracking legs, and coming in to the warm dry classroom with bleeding skin.
I sat on a cotton pillowcase which rested on the plastic chair. the plastic used to irritate my skin, because is was a bit sweaty!
once the skin go weepy and infected, i used to get stuck on to that pillowcase, and had to rip it of to leave the chair.
I know that I am very lucky that I didnt have nay eczema on my face, as I have met some people who have very thin eyelids from this treatment.
I do have damaged thin skin on my hands from years of eczema. I still get it , a nice christmas bout, which is the stress, and when i use bubble bath ( which I love, plus the whole glass of wine, a vampire book, and chocolate.............makes bathtime pure bliss), I still get a bit behind my knees and inner elbows every so often. Oh, and I cant wear metal watches, so a little bit of nickel allergy there as well.

Here are a few ezcema tips I have picked up while trying to contol william's skin..............

1) 100% cotton clothing.

2)store all creams and potions in a clean , dust free place.

3 ) wash hands before and after application.

4) use a spoon to remove a blob of cream from pot ( or pump bottle is good)before patting in to damp skin.

5) really , just PAT, not rub, slap, slide etc

6) apply in direction of hair growth , to try and stop increaseing the itch , scratch cycle.

7)cool bath, not to hot. and sometimes not given very often, depending on what works best.

8) dont warm clothes on radiatiors , and keep as cool as possible. remember hot = itch. Now i did go a little obsessive, and in the winter waved his pj's out the window to cool them before sliding on his bod. Which might have given the neighbours some pause for thought..............

9)read the labels, on all treatments, a lot of ezcema treatment have nut oils or peach nut oils, etc, and thats not good for those that might develop food/nut allergies. Be careful , natural in the world of food allergies, is not always good. it could be horrific.
and BTW check your own personal bubble baths, soaps etc, I once brought a milk and almond bubble bath. It fell down and dripped slowly down the side of the tub, while william was sitting in it. One half of his body hived up completely, and glowed red. Not a fun time, at all. Bit of a panic really, sort of looked like that film, the alien one, with steven speilburg......um,....close encounters! and the fella goes red on one side of his face and neck, well, william was like that on one side.

10) some of the creams rot elastic in clothes. esp if washing instuctions only call for a 40 degree wash. To get rid of grease , place clothes in cold water with salt over night, then wash as normal next day.

11) REPEAT APPLICATIONS OF MOISTURIZERS , AS MANY TIMES AS YOU THINK IS REQUIRED, MORE DURING FLARE UPS.

12) People with ezcema have skin that cant hold water, so they need to drink more and stop dehydration.

hope this is all helpful stuff for you dear reader, and please, try not to scratch while reading this post.

the sleep clinic..............

2009-05-08T01:57:00.000-07:00

The GP asking me to keep a sleep diary resulted in attending a 'sleep clinic', which is for all those mums who are at their wits end with high need babies.

We were on the waiting list for wet wraps,but decided to give this a go, as I thought we had nothing to lose.

The sweet health visitors gathered the group of gray faced , worn out mothers.
Who were dressed in the uniform of the completely knackered. The combination of lank hair with jeans, and t-shirts with old faded stains , and wet dribble patches on our shoulders.

We all flopped tiredly on to a selection of worn out danerously creaky chairs, and plopped our babies in the middle of the floor. They were, after all, wide awake.........

The babies sat next to a box of grubby plastic baby toys, and began to slowly slobber and chew them.

I suspect that similar tired thouths drifted in our heads in that pokey room , one being,
'oh god, it's finally come to this' and
then 'are the bags under my eyes as bad as hers'?

then the feeble, 'oh, that baby is sucking that toy CLEAN, but that mummy isnt bothered............should i get my wipes out'?

thankfully before any of us could take any firm action the leaders started their spiel.........and we discreetly put dummies in our babies mouths, or simply moved them further away from the toys, or like my son, left them to chew on another's socks, ( in my weary defense, it looked clean, and saved the owner the bother of doing it themselves.)

The health visitors grand plan turned out to be the standard controlled sleep method, were you leave an infant to cry for a short time, reassure them, leave them and so on.....
Until you are a puddle of weeping hormones sitting on the landing, while your infant screams bloody murder.

So, what can I say in my defense? I think that the fact that I was so sleep deprived , and worn out, and couldn't think properly made me give in and try this, a The vision of sleeping, really sleeping was always there in my head. Maybe, just maybe, I could have a three solid hour period of complete bliss.

I totally regret doing this, and will do until the end of my days.

As i mentioned in another post, William had ezcema, and when that skin heats up, as with crying, it becomes itchy, red and inflamed.

He cried, and then as the itch and stress of crying grew , he tore at his face and ears.
We were both sobbing as i removed the blooded cot sheet from his face with wet cotton wool.

However he did show a slight increase in the day time nap, and had perhaps on a good day , two 20 mins nap time.
He was crawling at the time, so perhaps the exercise helped him ( the skin on his legs got worse at this time).

The next visit to the clinic to report on our results turned out to be quite useful in the end. For some reason the Health visitors left the room, a sudden phone call meant a quick corridor meeting.

One mother, braver than the rest of us,finally admitted out loud that it didnt work for her, which was something we all had been trying to avoid saying.
In our polite way, we didnt want to admit we had failed again in not getting our beloved babies asleep.

Once that mother had admitted her failure, we could all confess, and then, that mother dipped her hand in her nappy changing bag, and brought out a little bottle. This, she said, grinning, worked, and we could buy this without prescription.

Then the health visitors came back in and the bottle was swiftly tucked away. Medication having been previosuly explained as 'not very often used, as we didnt want to go to the extreme of drugging our infants did we'?

I never totally understood the idea of giving the mother the sleeping drugs, rather than the infants, ( apart from tiny livers cracking under the strain, and the image of a baby with a belt, spoon and dirty syringe.....), I didnt like the idea of being asleep, and sleeping though my baby's cries of pain.

Because , even in those early days, I recognized that William's screams were not of a naturally non sleepy infant, he was in pain. I put it all down to his skin being the problem, and perhaps indigestion. It felt wrong to ignore that baby, and to leave them alone , crying in a cot in another room.

The sleep clinic carried on for half an hour, and i darted, almost skipped my way to the chemist. I think i even had a grin on my face!

This cold remedy worked, and once, (once, I recorded it in his baby book) at 9 months old he slept for first time for 5 solid hours!!

The longest period of sleep I had had since he was born.

THE THREE SIGNS OF A FOOD ALLERGIC INFANT (or in other words, THE GRIM FIRST YEAR)

2009-05-08T01:34:00.001-07:00

the three signs are,

ECZEMA before the age of three months, ( esp in a breast fed infant)

POOR/SLOW WEIGHT GAIN.

POOR SLEEP PATTERN ( inability to sleep for solid periods of time)

People often say that you worry aobut your child from the moment the placenta is delivered, but that doesnt mean that your worries are totally groundless. I am a great believer in a good old fashioned instinct.

I knew that something was odd abut William, and the health visitor thought so too, we just didnt know how different he was going to be.
By day 10 aftrer birth , HV noted his dry skin, and a strange 'blister' on his gum, which disappeared later that day.

By day 15, I waved him under the gaze of our GP and came home with a huge carrier bag that must have wiped out the pharmacy of eczema potions and lotions.
I was filled with instructions on when and how to use them. and added the eczema rountine in to my busy life , as a mother with three under 5's.

He also had a bit of cradle cap, and i made the mistake of using some cradle cap cream on this head, and watched as it begun to swell. He didnt find it very entertaining..................

I also discovered that a well know brand of very gentle , sensitive nappy cream made the skin on his bottom go red, hard and leather like, it also caused him to scream in pain.

As the early weeks, and then months went by, he was a real colicky infant, much like my others, only he didnt gain much weight. A slow weight gain, which dropped off quickly when he was poorly.
I felt a great deal of pressure to stop breastfeeding, comments like, 'your milk must be of poor quality, like skimmed, low fat milk' did crop up from time to time.

I dismissed them as being rather silly, he was taking in a good amount of milk, and all other signs , wet nappies etc, indicated a well fed baby.

He did , however look like a tired baby, ( i didnt look so good either) one who didnt seem able to sleep for a solid period of time, forever moving and twitching, he woke up frequently.

It was this lack of sleep that was the most difficult thing, and who can function well on little sleep?

When I mention the lack of sleep, I dont just mean the normal lack of sleep you get with infants, a vast mumber of infants do sleep for 4-5 hours solid in a 24 hour period. This wasnt true of our Will, he slept roughtly two separate hours a night, and 20 min cat nap during the day.

This is of course one of the reasons he didnt gain weight easily, as sleep is linked to growth for infants.

I kept a sleep diary, something my health visitor and GP asked for, I dont think they quite believed how bad it was at first.
I noted the first 8 times I got up, any less than that was a good night, more than that was a no sleep at all night for me. So I didnt count it , I didnt have the energy anyway.

Once the GP saw this, I dont think she understood why I thought that getting to only 8 wakeful periods of times was a good night. But for me, it meant that I was at least dressed for bed, and did lie down and close my eyes for a cat nap. The best period of sleep for William was when I sat upright in a chair, breastfeeding him, and then rocking him..................which sounds completely bonkers, but, his skin went mad if I took him in to my own bed.

During this time a housewife learns the art of doing the housework in different ways, perfecting the sweeping movement of the feet, to push things under the sofa. A quick spray in the air of furniture polish creates the illusion of a house recetnly dusted.

But, eventurally, I didnt care about any of that.......................................

the club no one wants to join.

2009-05-07T07:51:00.000-07:00

My son is not that a rare child these days, the rate of childhood allergy is rising, and every school has a selection of asthma inhalers, anti-histamine, ezcema moisturizers, and auto-injectors.
it's called the "allergy epidemic" a club that no one wants to join.

Every day is an allergy day, and our only real choice is complete avoidance, to an extreme level.
we keep our children safe, and struggle to keep life as normal as possible, while remembering to keep our mobile phones charged and emergency meds with us at all times. Not forgetting, a safe to eat snack, ( crushed, more often than not) in the bottom of our bags.

The NHS still hasnt caught up with our needs , depite sterling work carried out by the allergy charities , and that leaves us, in many areas of the UK , to struggle on alone with the extreme stress we live every day.
I am of the opinion that sometimes its helpful to laugh about things , rather than cry , and have been known to do both at times!
After all, my son is an equal mixture of the best and worst of both of us, we are of course an 'itchy and scratchy' family , to part of our son's life was our own childhood norm.

This blogg is part of my need to note down the long learning curve we have travelled , while adjusting to the needs of william. A child who has multiple food and environmental allergies.
i hope you enjoy my posts, and do feel free to leave posts.

a little about me, my kids, and allergies.

2009-05-06T02:35:00.000-07:00

hello,
I have the joy of four children and one hubby.
Currently the house is full of hormones, as i have three teens and a 10 yr old.
three boys and a girl.
I have a tall 17 yr old, a even taller 15 yr old, a 13yr old ( still in the stage of being forced to use soap) and a 10 yr old girl. ( who has been co-ordinating her clothes since she was 3 yrs old, right down to underwear and hairslides)

one child has food and environmental allergies.

I will be posting quite a bit on my allergic son's story, his grim first years, and adding some tips on the way.
I did try to write a book on our allergy adventures, but quite frankly, I dont have the cash to publish it myself, and worry that the money just wont come back....................but i still enjoy tapping away, and writing.

I am going to talk about some parental adventures, and ponder the basic questions women ask about themselves, like,
why am i the only one to put a new roll of toilet tissue on the holder?
when did I grow two extra boobs in the top front ? ...............and how did those back boobs get there?
or Q food shopping.............not suitable for those who are in the depths of PMT?

I do hope that others will e-mail any topics for me to ponder, and post here..................

thanks,
sarah.

10 points to = a allergy family.

2009-05-06T01:49:00.000-07:00

Dear reader...............read the points below, if any two points describe your family, then, and only then , are you welcome to follow my happy little postings!

YOU KNOW YOUR FAMILY ARE ALLERGIC PEOPLE WHEN......................

1) your hands sting when you dust around the house, sometimes going a nice shade of red...........

2) your son ( the one with the barrel load of allergies) climbs a tree at the park. Nothing wrong with that, however he comes back down covered in hives.

3) At the park, your hubby tries to shout up at son , who is climbing the tree, to get him to come down. But he finds this difficult, as he is wheeezing and eyes are streaming from hay fever/tree pollen.

4)one bright sunny morning, you watch your children moving oddly down the street on way to school. You realise , while watching them bunny hop, that you are doing the same. For a brief moment, you wonder if you have all caught some nasty disease......................but no, ..........................
you have commited the nightmare of using biological washing powder on your underwear..........

5) one day you accidently poke yourself in the eye, after turning off a dusty bedside lamp...............................finding that sleep is somewhat disturbed, you sit up and put the light on......................hubby takes one look at you , backs off the bed and runs to get the antihistmine. Hollywood pays a fortune to the make up people to get an eye to look as hideous , as swollen, (and slightly weeping ) as yours................dust allergy is soooo much cheaper. Someone should tell them.

6) as a couple you should never have breed, the warning signs were there, you just ignored them.
for instance, attempting to have a romantic session of open air passion, is just not going to work. No one enjoys bouncing up and down on your partner, only to find he/she is going blue. And, anyway, all that grass was stinging the ezcema on the back of your legs like crazy.................

7) sex indoors is the best way, and after a wonderful bout of heavy , sweaty passion, you dont pause for a cuddle, or kiss. No, for you both turn away from each other, and fumble for your inhalers at your respective bedside tables.
for you, the romantic phrase 'you take your breath away' has real meaning.

8) you apply your son's ezcema creams to his skin, his skin looks better, however your hands are red, burning and stinging...................

9) the phone rings, and your first thought after listening ( to the heavy breathing ) is to start shouting at the dirty caller , then calm down and instuct your mother to take her inhaler before calling you.

10) at a family party, your brother runs up to you and unbuttons the top of his jeans, shouting 'hey, take a look at this'!! , gratefully, you realise he is just showing you his tummy. Then you flinch , and look away from the horrible raw, red , weeping area around his tummy and start explaining nickal allergy.................